Patient selection: hereditary hemorrhagic telangiectasia
Physical problems:
(1) blood running down the back of the throat
(2) blocked up or stuffy nose
(3) nasal crusting
(4) fatigue
(5) shortness of breath
(6) decreased sense of smell and/or taste
|
How great a problem?
|
Points
|
|
none
|
0
|
|
mild
|
1
|
|
moderate
|
2
|
|
severe
|
3
|
|
extreme
|
4
|
Functional limitations:
(1) blow your nose
(2) bend over and pick up something up off the ground
(3) breathe through your nose
(4) exercise
(5) work at job or school
(6) stay asleep
(7) enjoying time with family and friends
(8) eating certain foods
(9) having intimacy with spouse or significant other
(10) travel
(11) falling asleep
(12) cleaning home or apartment
(13) going outdoors regardless of the weather or season
(14) cooking or preparing a meal
|
How great a difficulty?
|
Points
|
|
none
|
0
|
|
mild
|
1
|
|
moderate
|
2
|
|
severe
|
3
|
|
complete
|
4
|
Emotional consequences
(1) fear of nosebleeds in public
(2) fearing or not knowing when your next nosebleed will be
(3) getting blood on clothes
(4) fearing not being able to stop a nosebleed
(5) embarrassment
(6) frustration, restlessness and/or irritability
(7) reduced concentration
(8) sadness
(9) need to buy new clothes
|
How Often Bothered
|
Points
|
|
never
|
0
|
|
very rarely
|
1
|
|
rarely
|
2
|
|
frequently
|
3
|
|
very frequently
|
4
|
total score =
= SUM(points for all 29 items)
average score =
= (score of items answered) / number of items answered)
Interpretation:
• minimum score: 0
• maximum score: 28
• The higher the score the more severe the problem of nosebleeds.
